I agree, it is a shame that Michael has not raised awareness about Marfans syndrome or other connective tissue syndromes that are closely related to Marfans. When I began to suffer from ehlers danlos syndrome(a genetic connective tissue disorder closely related to and studied by the same specialist who study marfans syndrome) I was denied health insurance coverage affordable health care coverage. The local md's at the low cost clinic near my home don't even know or care what a genetic tissue disorder is and even refused to read the letter I brought from the diagnosising genetist. Unfortunately my story is not the only one of it's kind. It happens to many people who suffer from similiar disorders. One of the lasts things a genetist said to me was, it will take a great celebrity being diagnosed with a connective tissue disease to bring such diseases to the public attention and funding could follow. Look what Lance Armstrong did for cancer. I know Michael deserves his privacy, but it would be a blessing if he just mentioned the problems that many people with CTD(connective tissue disorders), face everyday. Maybe some of us could be spared an early death or a less pain full tomorrow. Thanks.